Spina Bifida

Orange County Convention Center and Partners Team Up to Support #ProjectUganda

This has undoubtedly been a painful time for many in our local and global communities. We wish to express our solidarity with everyone who is currently suffering in some way, due to the pandemic and recent incidents of race-based violence. We see and hear you.  We could use any glimmers of hope right now, which …

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Buffalo Family Scores Nothing But Net with Inclusive Wheelchair Basketball League

Emily is 10 years old and has spina bifida, and this is her family’s story about building something yourself when it isn’t already available so that all kids can shoot hoops together!  Today is World Spina Bifida Day, and we have an incredible story to share about one family’s persistence in creating an opportunity for …

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Why the ‘Heartwarming’ Story of a Little Girl Carried by Her Teacher is Problematic

Many of us have seen it– the “inspiring” and “uplifting” feel-good story about a teacher in Kentucky who carried a 10-year-old girl who has spina bifida (just like me) on his back during a school field trip so she wouldn’t miss out.  Awwww.  But here’s the reality of the situation that the general public seems …

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The Laurita Spina Bifida Project raises funds for medical supplies for children in Latin America

ORLANDO, FL – May 4, 2018 – (HISPANICIZE WIRE) – The Laurita Spina Bifida Project, in partnership with Asociación Para Espina Bífida e Hidrocefalia (APEBI) in Argentina, is proud to announce the launch of #ProjectLatAm, a fundraising initiative to support spina bifida communities in developing countries in Latin America. The current goal is to raise $2,000 …

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The Laurita Spina Bifida Project celebrates 1-year anniversary & success of ‘Project Tanzania’ with Jewel Award at Hispanicize 2017

ORLANDO, FL- April 27, 2017- (HISPANICIZE WIRE) – The Laurita Spina Bifida Project (The LSB Project), a non-profit organization whose mission is to start a global conversation about spina bifida, while connecting individuals and families living with it around the world, celebrated the one-year anniversary of its official launch on April 6th during Hispanicize 2017. …

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In Case You Are Jealous of My Friday Night

People often comment on my Facebook posts (especially fellow ladies!) saying what a fabulous life I have. They see me gliding from event to event, effortlessly, cozying up to public figures and instagramming delicious food (and coffee drinks)! I don’t blame you all for commenting, or even feeling a twinge of jealousy or resentment. It’s …

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My Actual Letter to the Mother who Aborted her Baby with Spina Bifida

A note to my readers:  Recently, I received an E-mail from a mom who contacted me for advice. She had a pregnancy affected by spina bifida, and at the recommendation of her doctor— she chose to abort. In addition, she wanted my advice on how NOT to have another baby with spina bifida. As you …

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